i. Is the information shared or linked with other studies or datasets?

Yes, only the minimum pieces of information are securely transferred to a number of other UK HIV studies, so that records can be correctly linked. Linking records then enables anonymised data from two studies to be used for more research analyses, and on a broader range of topics.   

We link or previously have linked records between UK CHIC and other UK HIV studies that are or were also managed within UCL: the UK HIV Drug Resistance database (HDRD), to understand better the epidemiology and clinical aspects of HIV drug resistance; the UK Register of Seroconverters; and The Collaborative HIV Paediatric Study (CHIPS) which studies the transition from child adult HIV care; the National Study of HIV in Pregnancy and Childhood (NSHPC) to study HIV in pregnancy; Pharmacokinetic and clinical Observations in PeoPle over fiftY  (POPPY), and the UK HIV Bioresource, part of the National NIHR BioResource.

We also securely transfer specific information to Public Health England, to enable linkage to their records for the purpose of improving data on deaths and causes of death in the UK CHIC study.